SNOW DAY

MRI RESULTS

Elyse's neurologist called me this morning. The report isn't available, but she spoke to radiology and there are no changes!!!

I will ask her pediatrician for a copy of the report, when she returns from vacation. I'm curious to see the measurements of her spine hemangiomas. Her neurologist couldn't give me the details without the official report.
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Home after MRI

Elyse is home. MRI was 3 hours long. I was starting to get a little restless, but then the nurse came and said she was out.

Elyse had a bit of trouble staying awake. She wasn't interested in drinking or eating anything either, but they said it was ok to bring her home if we were comfortable. She took a few sips of milk in the car and ate some oatmeal at home.

Now she's running a low fever which they said could happen. I'm going to give her a few ounces of water through her tube to keep her hydrated.

Not sure when we get the results. Shouldn't be that long. Her neuro is usually quick.
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MRI this morning

We are currently waiting in the hospital cafeteria while Elyse gets her annual MRI of her head & spine.

She went in at 8:30 AM and it will take any where from 1 hrs 45 min to 2 hrs. She is under general anesthesia, so recovery should be fast.
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bedtime

I'm going to keep a photo bedtime diary of Elyse.  

Every night I walk into her room and find things on her bed.  I didn't get last night picture.

 

 

Tuesday, Feb. 10

 

Tonight, Feb 12.

Annual cardiology check-up

Elyse had her annual check-up and she is doing great.

BP (blood pressure) is normal, her heart sounds good and EKG looks better than last year! He only said that when she's older, they'll want to do a MRI of heart to check her aorta.

Next week, MRI of her head and spine.

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Tired aren't we! I wonder why.

No explanation needed =)

Exhausted!

We had a little accident.  Friday morning Elyse fell out of her crib.  She didn't hurt herself.  Lalo had to go and buy a crib tent ASAP.  I had ordered one online on Monday, but because i was trying to save money, i had it shipped to the store and it was going to take 7-14 days to deliver. We had no choice, but to get the second one.

The tent he got didn't work out.  He also purchased a toddler rail for cribs (not cheaper either), so we have that on right now.  n bad.  The first night she stayed in it.  I guess she was exhausted.  She did wake up and manage to go to our room with my camera ??? she must of seen it and decided to bring it to me.  I didn't even notice the camera until the morning.Last night was worse.  She would not stay in it.   She kept getting up a million times.  I was getting very frustrated and I really wanted to put the crib rail back on.  I tried not talking to her and just taking to back to her bed.  I was so tired that I ended up rocking her to sleep.  Of course she was back in our room early in the morning.

Tonight was better.  She got up a couple of times, but as some suggested... I closed her door and she couldn't up it.  she cried a little and got back into bed.  An hour late, she is asleep.  YAY!  I'm sure she'll be in our room this morning.  I'm not going to kept her door lock.  I have major organizing to do to her room before I do that.  We still have medical equipment that i would want her to play with, in case she got bored.

 

Left pict. first night. Right pict... trying to be sneaky.

We also visited the zoo Saturday afternoon. My old H.S came over and picked Elyse and I up. Elyse didn't enjoy it much because she hadn't napped. Which is another thing we've been struggling with. She doesn't want to take naps!!!!

I'm hoping that this week she gets back on track.