Today was a busy day in Milwaukee.
Alex was seen by Dermatology and then Pulmonary. Both appointments went well. Elyse was a little jealous that the appointments weren't for her. She's so used to it being about her. She kept asking if it was Ezzy's turn.
Then both kids were seen by the ENT.
Elyse's sleep study results were good. No obstructions. He said he doesn't need to see Elyse, unless something comes up. yay! She even had a hearing test and her hearing is excellent. She look so cute. She was so proud of herself. Me too :) I wish I had a camera.
Alex's CT results weren't good. Doctor said that Alex head CT showed an ear abnormality called Vestibular Aqueduct. This condition can cause him to have permanent hearing loss. It wasn't what we were expecting to hear. I felt that the ENT did a horrible job explaining this condition. First he made it sound like it was very serious. He's telling us how head trauma can cause him to have or accelerate the hearing loss. Yet he said to let him do boxing?? Doesn't make sense to me.
Alex is freaked out by this, as i am too. I felt horrible. I didn't know what to really tell him. I've never heard of this and the doctor didn't help. He ordered another hearing test and the audiologist gave us some information that another doctor had written.
All we know, based on what the ENT told us... there is no explanation for this condition. He could have total permanent hearing loss in both ears (currently, only left is being affected). Head trauma can make it worse, but he said many football player have this condition and their hearing loss hasn't gotten worse. This condition could be hereditary (right now, I'm thinking this is what my mother has). He told Alex that if he notices any changes in his hearing, he has to let us know right away and we need to bring him back.
I just emailed his pediatrician. I'm hoping that she can do a better job talking to Alex about this condition. I just started reading on it and so far, i'm still no getting it. :) Maybe i'm too tired. I did read that contact sports should be avoided. I don't think Alex no longer wants to do boxing. I don't blame him.
The only suggestion the ENT had, was placing a ear tube in the left ear. Alex agreed.
I am very disappointed with the ENT. I'm going to wait to see what his pediatrician says, but I'm thinking of taking Alex back to his old ENT for second opinion. I'm sure they will explain it better and not freak out my poor kid.
PS.
oh yea... :) I'll to be 20 weeks (5 months) pregnant on Thursday. That's going well. This Friday, I'll be having a special ultrasound to check the baby's heart. Same kind Elyse gets. I'm not concern about it. Then next week, I'll have my 20 week level 2 ultrasound. =) Baby is kicking alot now days. Lalo finally got to feel him last night. AND we are still debating the name. Lalo is still insisting that his middle name be Tiberius. NOT HAPPENING.
