Last week Alex had the Flu. Friday Elyse started with fevers, then the coughing and sneezing started plus runny nose. appetite wasn't good either. she was drinking her pediasure, but Monday she didn't want anything, so we had to tube feed her. I finally made an appointment at the clinic because she wasn't letting us sleep. I'm glad i did. turns out she has another ear infection. one of her tubes is blocked and the other one seems to be out AGAIN. She back on antibiotics again. He wants us to follow-up with her ENT. Poor mamas.
Alex is doing better. I'm starting to get a cold and everyone in my mothers house (thanks to Alex) has flu like symptoms too. the doctor we saw yesterday said that the flu is hitting a lot of people this month.
other news -
Monday Elyse had her first IEP evaluation for speech. She did good even though she wasn't feeling to good. My little mamas was very proud of herself whenever she answered a question. so cute, she sign the word and then say it. The speech therapist said that she will qualify for Speech.
afterward Lalo & I got interviewed by the social worker & nurse. Today we were supposed to meet again. she was going to get evaluated by occupational therapist and lalo & I were going to meet with the psychiatrist. I rescheduled since Elyse is sick and they gave me such a short notice. now we wait again.
At 4 weeks old & after major heart surgery, Elyse was diagnosed with PHACE Syndrome, a condition that describes a group of findings including:
P - Posterior fossa malformations
H - large cervicofacial Hemangioma
A - Arterial anomalies of the head & neck
C - Coarctation of the aorta & cardiac defects
E - Eye anomalies
S - Sternal cleft.
Elyse has: H - A - C