Good Morning Boogie

She had us guessing again. She's been singing & dancing something she learned in school, so Lalo went online and figured it out (we think).





Good Morning Boogie

Hello Neighbor, what do you say?
(Children bow to each other)
It's going to be a happy day.
(Children clap hands together)
So greet your neighbor,
(Children give each other high fives)
And boogie on down.
(Children wiggle their hips)
Give 'em a bump,
(Children bump their hips together)
and turn around.
(Children turn around)

The bus

Second week of school and Elyse is doing great. Still no tears. Yay, my little mamas! Yesterday was her first day riding the bus to school (they bring her home too). We had some issues with them not having a car seat installed (because she is so little and it’s written up in her IEP) but that was taken care of. Today the bus had the seat installed. Very cute, she saw the bus from our window and yelled, “Mommy! The bus! The bus!” it was a couple minutes early. Yesterday it was 5-7 minutes late, so I really wasn’t expecting it. Thank God she was ready. Even sitting on the car seat, we could barely see her forehead from the bus window. Sorry no pictures. =(

In two weeks, we will be taking her to Milwaukee for another head MRI/MRA. This will be her first scan in Milwaukee. The doctors wanted a scan with their settings. I guess each hospital does it differently and in Milwaukee, they have a specific protocol for the PHACE children, which I like. She will be sedated, which will also be a first time. They will use general Anesthesia if they notice any signs of trouble with her breathing. After the scan, we will meet with her dermatologist who is now her doctor that we will be seeing for the PHACE. I don’t know when the MRI will be reviewed, but neurology will also review it and then decide if Elyse should be on aspirin therapy because of her abnormal brain vessels. so we'll see what happens.

Vote PHACE Syndrome to be featured on The Doctor's TV Show

PLEASE VOTE!

Shared via SHARE THIS!

1st day of pre-k!

Before I begin to update... Please pray for 6 year old Molly who lives in the UK. Molly, like Elyse has PHACE Syndrome. Yesterday her mother informed all of us (in the PHACE Community) that Molly suffered a major stroke and has a life threatening aneurysm. We are all very sad and frighten. Please pray for Molly and her family.

Now for Elyse's update...

Today was Elyse's first day of prek. As expected, she did great. No tears. As soon as we walked into the classroom, she took off her bag and left us. Parents had a meeting in another room and the kids stayed with the assistants for 45 minutes. When we came to get her, she did not want to leave. They had taken the kids to the playground, so i had to go in and drag her out. =) she's looking forward to it tomorrow.

Leaving school. =) Look at that face. She was not happy.

Nap time! Very exhausted.