In Milwaukee...

Alex had a lung function test on Friday and a head CT Scan Saturday morning. 

At the Ronald McDonald House.  The look on her face was priceless when I took her into the playroom. 

Getting setup for the sleep study.  She wasn't happy.  It was an awful night for both of us.  I pray that we never have to do it again.  It was so uncomfortable!

it was a struggle to put it all on.

Me, trying to calm her down a little

They used some kind of awful, strong smelling hair glue to keep that stuff on.

She looks all beat up.  Her left eye lid quickly swelled up.  They didn't hurt her or anything.  That's the lid with the hemangioma and lazy eye.  It's very sensitive. 

We will return to Milwaukee in April.  The results for both Alex and Elyse will be ready.  I'm pretty sure if things look bad, they'll call us in sooner.  Keeping our fingers cross for good results.

Alex got a CT scan of his head to see why he's having some hearing loss in his left ear.
He got the lung function test because he complains that his chest feels tight when he exercises.

Elyse got the sleep study because the ENT saw her tonsils and Adenoids enlarged.  He's concern that's she's having sleep apnea that could be very bad because of her cardiac history.  We never noticed any snoring until he asked.  We never heard it through the baby monitor, but one day I stayed in her room and I did hear her snore, it's not loud though.

“Focusing on Angles” Photo Challenge!

 

I love this picture and I thought it would be great for this weeks photo challenge at I heart faces .

This is beautiful baby Hailey, one of Elyse's PHACE's friends.  I took this pictures in one of our get togethers when she was about to turn one (I think).   She always had that serious look.  :)

Don't forget to head on over to www.iheartfaces.com to check out all of the entries this week!

Update on Ezzy's eyes!

Woo hoo! Elyse's vision in her left eye is improving!!!

We have been dilating her right pupil (good eye) since December for lazy eye. On Saturday we took her to see her opthamologist and we are soo excited that the once a week treatment is working! No glasses!!!

When the nurse first checked Elyse, she didn't want to cooperate. I was beginning to worry that her vision was getting worse, but then Dr. Curnyn came in and with some struggle, she was able to get Elyse to read the pictures with the right eye patched. Elyse allowed the doctor to examine her eyes up close without fighting me.

Dr Curnyn was just as excited as we were when Elyse started reading all the pictures. I asked her though, why Elyse continues to fight us when we try getting her to read the pictures with her right eye covered and she said because Elyse knows that its her weak eye. She gave us some patches to "practice" at home.

Dr Curnyn wants us to continue with the treatment for 2 more months. She is very hopeful that when we return, Elyses vision will be 20/20 and we can discontinue the treatment!! :)

I am soo happy we switched opthamologist. She is amazing and the way she gets Elyse to cooperate, leaves me speechless. I totally recommend her!!!!


Sent via BlackBerry by AT&T

BABY!!!

today i had my genetics screening appointment that included a ultrasound.  they asked if i wanted to participate in a fetus research study.  i said ok.  it just involved more ultrasound pictures.

well i wasn't expecting to find out the baby sex today because i'm only 13 weeks pregnant, so i didn't bother asking.... but when the tech asked me if i wanted to know i was pretty shocked that they could tell.

she said that normally it's too early and they never could, but this baby was in perfect position.  legs wide open :)

we are having a boy!