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Thursday, July 30, 2009

Sneaky!

Ahhh! She's finally mastered opening doors and the refrigerator.

I had to buy covers for the door knobs. She loves playing with sink. Water is everywhere or if she goes potty in the big toilet, she leaves a mess for me.

Then she opens the refrigerator and takes food out. She knows her daddy keeps his Reeses peanut butter cups in there. Funny how she takes one for herself and one for daddy, so he won't say anything to her. It works. Saw it happen yesterday. Now I need to buy a lock for the refrigerator too!


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Tuesday, July 28, 2009

Milwaukee - short update.

Last week, we stayed overnight at Milwaukee, WI.  No appointments.  Just fun.

Thursday evening, we got together with other PHACE families, mostly families around the area.  We enjoyed it.  Friday we went to the Milwaukee zoo for a The Birthmarks and Vascular Anomalies Family Conference hosted by the Children's Hospital of Wisconsin Dermatology clinic. That was nice too.  We came home that same evening.

I didn't take that many pictures.  I was having too much fun holding one of the babies. 

click on the link for the pictures.  I'm too lazy to upload them here.

Milwaukee Pictures

AUGUST 18... WE HAVE A GI APPOINTMENT.  KEEP YOUR FINGER CROSS THAT THE TUBE COMES OUT and we also have a Pulmonary appointment for the first time in Milwaukee too.

Tuesday, July 21, 2009

Potty news!

Elyse has been accident free for two week!

I've been afraid to post about it, didn't want to jinx it.  She has been going by herself and has managed to stay dry at night (well most nights).  I have to make sure not to give her too much liquid at bedtime, which i normally don't and as soon as she wakes up, I run into her room and sit her on her potty.

I was afraid she would never get it.  We've been working at it for a year.  Her nurse Ida started her off last year around May. I'm really excited.  I'm hoping that by the time school starts, she'll be a pro. 

I have to give Ida a call and let her know of the exciting news.  I know she will be so excited to hear about her "chicky".

Wednesday, July 15, 2009

Your support is urgently needed - Children's Memorial Hospital (Chicago, IL)

Please sign this petition today in support of a heliport at the Ann & Robert H. Lurie Children's Hospital of Chicago. Even if you sent a letter or signed a petition in the past, we ask you to take a minute to renew your support of the heliport. The heliport will help save lives and is an essential part of our ability to fulfill our mission of caring for the region’s children. Thank you.




Your support is urgently needed - Children's Memorial Hospital (Chicago, IL)

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