At 4 weeks old & after major heart surgery, Elyse was diagnosed with PHACE Syndrome, a condition that describes a group of findings including:
P - Posterior fossa malformations
H - large cervicofacial Hemangioma
A - Arterial anomalies of the head & neck
C - Coarctation of the aorta & cardiac defects
E - Eye anomalies
S - Sternal cleft.
